Prader-Willi Syndrome (PWS)
Prader-Willi syndrome is a rare and complex genetic condition, which affects males and females of all ethnic groups.
It starts in infancy and is characterised by weak muscle tone (hypotonia), feeding difficulties, poor growth, and delayed development. The individual has a constant craving for food, which can rapidly lead to dangerous weight gain and a wide range of physical symptoms, learning difficulties and behavioural challenges such as emotional outbursts and physical aggression. The diagnosis of this rare condition should be confirmed by genetic testing.
We have experienced and trained staff accredited by the Prader-Willi Syndrome Association UK to support service users with this condition, and with the involvement of their families and healthcare professionals, we are proud to offer a wide range of services to meet their needs, including the following:
- We provide a 24-hour person-centred and strength-based support model for our service users with this condition, in a safe, comfortable, and homely environment where they can thrive and lead a comfortable life.
- Multi-professional team support and partnership to the care and support of our service users
- Supported accommodation for those transitioning into adulthood and young adults.
- With the assistance and guidance of healthcare professionals and clinicians, we implement management strategies and Positive Behaviour Support (PBS) programmes.
- Social inclusion and integration by supporting the service user to access community facilities and religious and social-recreational activities safely.
- Actively supporting the personal growth and development of our service users through engagement with educational, occupational, recreational facilities, day services
- Support to access psychological, medical, and nutritional services and maintaining ongoing reviews with these clinical and managing the care pathways.